Click above for more information about the journal itself and to subscribe.

Thursday, May 29, 2014

Isolation: A Diary of Subtle Discrimination




Image of brown egg with unhappy face surrounded by white eggs that appear to be excluding or making fun of the brown egg.














 
Although I am a self-described white lady of excellent education and moderate means, I follow with interest developments in ethnic studies, women’s studies and social justice because they so often resonate with my experiences as a person with a disability and a professional in the area of disability studies. A recent article in the New York Times, “Students See Many Slights as Micro-Aggressions” (March 21, 2014) caught my eye because in discussing how seemingly innocent comments can convey subtle forms of discrimination, the author lead with:
“A tone-deaf inquiry into an Asian-American’s ethnic origin. Cringe-inducing praise for how articulate a black student is. An unwanted conversation about a Latino’s ability to speak English without an accent.”
Tone deaf? I realize this is a common figure of speech, but still. It amazes me that an entire article about the expression of micro-aggression via the use of language in higher education could so blithely ignore this obvious stereotyping of deafness as equated with ignorance.
Cartoon of woman looking at a tall ladder labeled "men" and short ladder labeled "women" with caption "Corporate Whoppers" 
But language is really just the tip of the iceberg here (no offense to icebergs). Many of us with disabilities in professional roles have been waking up to the fact that just because we have advanced degrees and know a lot about a lot of stuff does not mean that we have shed discrimination like an unwanted Christmas sweater (apologies to Aunt Gladys). In fact, just as with women and ethnic minorities who have banged their heads firmly against the glass ceiling as they climb up the professional ladder, we are experiencing a profound dose of “ouch” (even more painful for those of us who may have more than one “minority” identity).
Mary Rowe, in a still-relevant article published in 1990, “Barriers to Equality:The Power of Subtle Discrimination to Maintain Unequal Opportunity,” describes how overt prejudice has been replaced by more subtle forms of discrimination that nurture persistent inequalities in education and the workplace. Even though blatantly telling someone that they have been denied promotion because they are a woman is no longer acceptable in the United States, as happened to my mother-in-law in the 1970’s, actual prejudice still persists and results in the same mechanisms of exclusion. Writes Rowe:
“[Micro-inequities as] mechanisms of prejudice against persons of difference are usually small in nature, but not trivial in effect. They are especially powerful taken together. (As one drop of water has little effect, though continuous drops may be destructive, one racist slight may be insignificant but many such slights cause serious damage.) Micro-inequities work both by excluding the person of difference and by making that person less self-confident and less productive.”

Image of hand separating 1 green fish from several goldfish

I have to confess that I am still mulling over (o.k. I am still mad about) a recent experience that brought these issues home to me. At the grand gala of a recent conference focused on disability, I secured my usual table up front near both the stage and my assistive listening device. For those of you who don’t know me, I am both legally blind and severely hard of hearing (aka deaf-blind), and I am always worried about missing something, which is fruitless since I miss half of everything no matter what. Anyhow, I kept waiting for someone to join me at my table. I know other people are often shy about sitting up front. And I know my wheely colleagues likely couldn’t even get up front. But I observed as the tables around me filled with people. And no one sat down at my table. Do I have lice? I wondered. Is there food in my teeth? The conversational buzz around me increased as people talked and laughed, and there I sat alone. I peered around, trying to recognize someone that I knew. I knew people there, but I couldn’t see where they were sitting and no one approached me. A wave of isolation and loneliness settled in. Then the program started, and the speakers talked about inclusion, and access, and recognizing diversity, and I didn’t know whether to laugh or cry. I put on my dark glasses, just in case. Finally I had enough. I gathered my things. Then I noticed a sign on the center of the table, “Reserved.” Reserved? Reserved for who? For me? Special me? Surely not. Whoever the table was reserved for, they didn’t show up
 
Whether you call it “micro-aggression,” “subtle discrimination” or “micro-inequalities,” the impact of being treated with disrespect or even just lack of awareness is damaging to the individual and hard to prove. How do you confront and correct colleagues who talk behind your back about how you are “arrogant” when you speak your mind about social justice issues that are important to you not because they make you look pretty but because to you they are intensely personal? Who do you complain to when you sit alone at a meeting in a room full of people who assume that isolation is your choice, when in actuality you cannot see/hear/move to join them? It is easy for people to make excuses that shift responsibility away from them and onto the person being discriminated against: “You need to learn to tone down your opinions,” or, “Oh, that was unintentional.” But one after another, these “mi- croevents build up into one giant iceberg that blocks the path to success.
I took the liberty of substituting “people with disabilities” for “minorities and women” in an article posted by Bowling Green State University, titled, “Subtle Discrimination”. The results highlight the striking nature of discrimination, no matter the reason:

“Subtle Discrimination"

There are a broad range of subtle behaviors and events that perpetuate inequities for people with disabilities in post-secondary education…

  Condescension: the apparent refusal to take people with disabilities seriously, as students and col- leagues, which is communicated through posture, gesture, and tone of voice.
Role stereotyping:  the expectation of behavior that conforms to the disability role stereotype. Disablist comments: expressions of derogatory beliefs about people with disabilities such as statements of “inferiority,” “not intelligent,” and “not serious.”
Hostility:  avoidance, expressions of annoyance, resentment, anger, jokes, and innuendoes.

   Exclusion: unintentional and intentional oversights denying people with disabilities access to events.

  Denial of status authority: the covert refusal to acknowledge a person with a disability’s position or their scope of authority (e.g., bypassing the individual and going to their supervisor).

Invisibility:  the failure to recognize the presence or contributions of people with disabilities.

Double standard: differential evaluation of behavior as a function of disability attribution (e.g., regarding an able bodied person’s non-academic experience as “enriching” and that of a person with a disability  as indicating a “lack of focus.”

Tokenism:  the discretionary inclusion of one or few people with disabilities.
Divide and conquer: the use of tactics that maximize the social distance of people with disabilities from each other (e.g., informing the individual that s/he is superior to others of the protected class in ability or achievement).
Backlash: the rejection of men and women who support efforts to improve the status of people with disabilities.

Am I being subtle enough? You be the judge.

Cartoon with caption "Big elf discrimination suit." Lawyer is sitting next to a large elf, saying to a small elf "So its your testimony that you do, in fact, have a hiring policy that gives preference to exceptionally small workers?"

Tuesday, February 11, 2014

Q and A with David Leake, Ph.D.


 
                                         Who is "David Leake"?

I am a father of three flourishing young adults, husband of a wonderful wife who is a nurse practitioner specializing in diabetes at Queens Hospital, and a player of West African drums as my main hobby. I ended up in Hawaii by a route that began with joining the US Peace Corps as a way to see the world after graduating from college with a Bachelors in psychology. I worked for two years on clean water supplies in the Malaysian state of Sarawak and two years on health education in the state of Sabah. Then I stayed on to work as an editor on English-language newspapers in Sabah and the neighboring Sultanate of Brunei. After several years I decided that journalism was not the career for me and came to UH Manoa on an East-West Center fellowship to pursue a PhD in medical anthropology. This choice was inspired by my cross-cultural experiences in the health field in Malaysia. Enroute to the PhD I also got a Masters of Public Health specializing in international health. However, my East-West Center fellowship ran out in 1989 before finishing the PhD, so I had to find a paying job which turned out to be with the Center on Disability Studies (CDS) where I have worked ever since.


You have been working with the UH Manoa Center on Disability Studies for more than 20 years! What is your most memorable project? Please share with us.

The most memorable was the Hawaii Ohana Project, conducted 1994 to 2000, which I believe remains the highest value CDS project to date at about $13 million. When the grant competition was announced in early 1994, Hawaii’s service system for youngsters with serious mental health challenges was rated among the lowest in the country, largely because Hawaii’s Child and Adolescent Mental Health Division (CAMHD) was seriously underfunded and understaffed. I became acquainted with the CAMHD director as a result of directing a CDS project on transition-to-adulthood for youth with serious mental health challenges, and this led to my taking on the task of being the lead grant writer on behalf of CAMHD. When the application was approved, CAMHD contracted CDS to conduct the project, and I served on the project management team. The Hawaii Ohana Project demonstrated a new service model called the system of care, based on the values that services be integrated across agencies, community-based in preference to office-based, and responsive to youth and family input into policy and practice decisions. The project served the Leeward Coast area of Oahu, where I also had the opportunity to conduct my dissertation research. It so happened that, as the project was launching, the State of Hawaii agreed to a Federal Court consent decree to improve its child and adolescent mental health services by also instituting system of care values. The Hawaii Ohana Project was an important component of efforts to meet the Consent Decree, as our staff did initial demonstrations of how the system of care should operate and conducted trainings around the state. As a result of these efforts and a great increase in funding approved by the State Legislature, Hawaii now ranks among the country’s top states in child and adolescent mental health services.

From the perspective of a medical anthropologist, can you explain how culture affects youth regarding mental health service needs?

A major concern of medical anthropology is to explore how different cultures tend to view the causes of mental or physical illnesses and the best ways to treat to them. Beliefs about these issues guide how people respond to different illnesses and decide whether and where to seek help. Sets of cultural beliefs may be understood as forming “cultural models” that are widely shared in the culture and allow its members to easily understand each other. Some examples from my own dissertation research may help illustrate. While working with the Hawaii Ohana Project, I interviewed numerous people and identified three common cultural models about why youth in the community (in which Native Hawaiians are the majority) might develop mental health challenges and what should be done about them. Native Hawaiians who value their cultural traditions often identify loss of connection with the land and traditional values as a major cause, and part of the solution would be regaining connection and strengthening the Native Hawaiian identity of youth through cultural activities such as hula and growing taro. Members of the community mainstream tend to blame the parents of “troubled and troubling” youngsters for not giving their children needed love and attention (which may need to include strict discipline). And service providers (teachers, psychologists, social workers, etc.) tend to trace mental health problems to the social environment, especially the effects of poverty on families, and recommend services they can provide (therapy, special education, etc.).

What projects are you working on right now?

I am working on several grant proposals to improve educational outcomes for youth with disabilities; preparing a conference presentation on data gaps on postsecondary students with disabilities; and co-chairing the Diversity, Disability and Public Health topic area of the CDS’s 30th annual Pacific Rim International Conference on Disability and Diversity in May 2014. I’m also collaborating with my CDS colleague Steve Brown on a workshop for the Hawaii Psychological Association’s 2014 Conference on Diversity, with a focus on Disabilities. This workshop is intended for anyone in the helping professions (including graduate students) who works with people with disabilities, and offers four Continuing Education credits. It will be held on April 12, 2014 in the University of Hawaii at Manoa’s Campus Center. For more information, please visit http://www.hawaiipsychology.org/diversity/2014/index.html.

What are the weaknesses of how we do research in the field of disabilities? Can you elaborate on one example?

People with disabilities may face difficulties in establishing social relationships due to such issues as communication barriers (e.g., hearing or speech impairments) and experiences of discrimination. This can be significant because social support networks are the main source of “social capital” which refers to resources people can use to achieve their self-determined goals (e.g., people often find jobs through friends or relatives). However, social supports and social capital seldom seem to be the focus of research in the field of disabilities. Instead, most research seems to focus on “technical” issues like assistive technology, diagnostic procedures, accommodations, and so on. Even if social issues are considered, the focus tends to be on “technical” fixes such as teaching social skills to people with disabilities rather than how to transform social environments so they are more inclusive. An example I know well is research on college students with disabilities. It has been shown that students who feel like they are socially integrated and “belong” on the college campus are much more likely to persist and graduate compared to students who feel socially isolated. I did a review of the literature that involved classifying over 1,000 research articles as social oriented, technical oriented, or mixed. The results showed that fewer than 10% of articles on students with disabilities had a social focus, compared to nearly 25% of articles on other student subpopulations or students in general. It was notable that a major research topic for at-risk populations besides those with disabilities, such as ethnic minorities or low income, was how to promote their social inclusion. I believe there’s a great need for more research on that topic for students with disabilities.

If you were granted a magic wish, what would you like to ask for?

I’d wish for an end to money in politics!